Who we are
The neuromuscular centre is a charity dedicated to empowering everyone affected by neuromuscular conditions, including muscular dystrophy, to live healthy, fulfilling and productive lives.
We are committed to protecting and respecting your privacy. This privacy notice explains what personal information we collect from you and what we do with that information. The Neuromuscular Centre is the data controller of your personal data. We are a registered company in England & Wales, number 02806607, registered address The Neuromuscular Centre, Woodford Lane West, Winsford, Cheshire, CW7 4EH.
What personal information we collect from you
- When you contact us by phone, e-mail or post, we will securely store the contact details and personal information you give us so we can respond appropriately to your request.
- When you fill in a contact form our website securely processes and stores what you enter, and e-mails it to us.
- When you visit our website, the server and website security software may process and store your computer’s IP address (which contains approximate location information) within the scope of the law, to prevent unauthorised access and ensure our website works as intended.
How long do we retain any personal data
We will retain your data for as long as the law requires us to do so, or where there is either a contractual requirement or legitimate reason to do so. In most cases it is unlikely that we would retain your data beyond seven years. There may be circumstances where we may be required to hold data for longer, for example where there has been a safeguarding concern or following a serious accident.
Cookies
Our website uses cookies as detailed in our separate website cookie notice.
Links to other websites
This privacy notice does not cover other websites that our website may link to. Please read the privacy notice on the other websites you visit.
How we use your information
- To respond to your request – the major use of your information will be to respond to the request you have made to us. This includes making enquiries and arrangements for visiting; processing donations you make to us; managing your role with us as a volunteer, service users, staff member etc.
- To run our internal operations – we also use your information for our internal communications and operations. This includes internal communications about a visit; personnel record keeping; analysis of visitor occupancy, etc.
- To communicate with you about us – if you have given us consent, we will send you our e-newletter six times a year and other news from time to time by e-mail.
How and where your information is stored
- Website – our website uses a securely encrypted connection to transfer any information you submit, and stores it in a database on the server which is based in the UK.
- The Neuromuscular Centre – we also store your information at the NMC. Electronic records are stored and backed up on our secure servers and paper records are kept locked.
- Email – our email system is hosted by Microsoft who may store information outside the European Economic Area.
Disclosing your information
We only share your personal information when it is necessary to do what you have asked us to do, or if we are legally obliged to. Any sub-contractors we use in this way, we have a written agreement to ensure your personal information is treated securely and in accordance with this privacy notice.
Access to your information
You have the right to :
- know what information we hold about you
- ask us to correct or update your information
- ask us to change your communication preferences
- remove your information (unless there’s a legitimate reason why we need to retain it)
How to contact us
- By phone – 01606 860911
- By post – The Neuromuscular Centre, Woodford Lane West, Winsford, Cheshire, CW7 4EH.
To update your contact details we hold or to change your communication preferences – please contact us using the above contact details or email: news@nmcentre.com
If you have any requests, questions or concerns about your personal information – please contact us using the above contact details or email: info@nmcentre.com
Changes to this privacy notice
This privacy notice was last updated on 6th Oct 2025. It is reviewed periodically and any future changes will be updated on our website.
See also our website cookie notice.