Living with a neuromuscular condition

Living with a neuromuscular condition can present many challenges to daily life at home, enjoying social activities, work, school or university, when travelling or even when sleeping. 

These challenges may affect partners, relatives and friends – not just the person with the condition. We are here for anyone affected by a neuromuscular condition.

We can provide information and advice on managing lifestyle changes, including home adaptations, applying for benefits, accessing a care package or a personal assistant.

We hold regular equipment demonstrations and information days at NMC. We can also arrange to visit you at home and help organise an assessment with an Occupational Therapist.

Mobility

We can help source a suitable wheelchair or scooter, and can arrange for you to speak to people who use them. We can also arrange demonstrations from local companies, who will help you make the best choice for you.

We have produced the following document with tips for driving and changing your vehicle.

Financial issues

Financial issues may be a source of great anxiety. There are people here at NMC who can help you complete forms, write letters of support and contact appropriate organisations for help.

Going on holiday

Planning a holiday can be daunting as there is so much to think about. You may not have ventured very far, or as your condition has changed you might have lost confidence in travelling.

We have extensive knowledge of accessible travel including places to stay and visit. Our holiday booklet includes details about:

  • Holiday Tips and checklist
  • Specialist Travel Agents
  • Equipment Hire
  • Travel Insurance
  • Help towards the cost of a holiday
  • Air travel
  • Cruising
  • Driving Abroad

With our tips, advice and details of all different types of holiday both in the UK and overseas, we hope we can encourage you to have the confidence to find and enjoy the right type of holiday for you.

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